What is the Australian Stroke Clinical Registry (AuSCR)?
The Registry collects information about what happens to people who have had a stroke or transient ischaemic attack (TIA), which is often called a mini-stroke. We collect information from hospitals and patients to find out about the care patients receive in hospital and their subsequent recovery after a stroke or TIA.
Why are you collecting this information?
Hospital care is inconsistent, and the data in the AuSCR are collected to identify where aspects of acute stroke care could be improved. Registry data are used by health planners, doctors and other clinicians to improve stroke care, treatment and rehabilitation.
Will the information be kept private/confidential?
Yes, all personal information is kept strictly confidential and cannot be used outside the AuSCR. Details about how the AuSCR complies with the Australian Privacy Principles are given here. The registry data is stored in a specially designed password protected database which can only be accessed by a small number of approved AuSCR staff. The names of individuals are not identified in any public reports or publications.
How will the information be used?
The AuSCR data are used to produce summary reports on factors that influence the success of stroke care and rehabilitation. Hospitals participating in the Registry will have access to their own information for reporting and quality assurance purposes. Some reports may be presented at conferences or submitted for publication in medical journals. All personal information is protected, and all data published is de-identified, in accordance with the Privacy Act 1988.
How is the AuSCR funded?
In 2008, initial establishment funding for the AuSCR was provided by the Australian Commission on Safety and Quality in Health Care and an unrestricted educational grant from Allergan Australia. State Health Departments, the Stroke Foundation, the Stroke Society of Australasia, the National Health and Medical Research Council, and other industry and philanthropic organisations also provide support.
If you have any further questions please contact the AuSCR Office.