National Stroke Data Linkage Interest Group

This page provides information about the National Stroke Data Linkage Interest Group.  It includes:


The role of National Stroke Data Linkage Interest Group

The aims of the National Stroke Data Linkage Interest Group are to:

  • Seek advice from members and data custodians on the processes required for linking data on patients with stroke to externally held datasets
  • Collaborate and seek a thorough understanding from members of the data transfer and linkage processes required to link these data to various external datasets held by state and commonwealth governments including:
    • hospital administrative data (admissions and emergency presentations)
    • death registry data (National Death Index)
    • prescription data (Pharmaceutical Benefits Scheme)
    • medical visits (Medical Benefits Schedule)
  • Share knowledge on data coding, statistical techniques for the preparation of datasets and for the analyses of linked data
  • Collaborate on writing grants to access data to understand the continuum of stroke, from prevention to quality of care and long term outcomes
  • Explore future linkage possibilities for the AuSCR and other datasets

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A brief history of the National Stroke Data Linkage Interest Group

The Data Linkage Sub-Committee was established by Chief Investigator Professor Dominique Cadilhac as part of Stroke123.  This was a complex study with numerous partner organisations and collaborators.  To facilitate the coordination and running of the project, various sub-committees were established including the Data Linkage Sub-Committee.

In 2018 this sub-committee was renamed the National Stroke Data Linkage Interest Group to identify the transition from Stroke123 to more generic national stroke data linkage projects.  The oversight and governance of this Group will be performed by the Australian Stroke Clinical Registry (AuSCR) Steering Committee.

National Stroke Data Linkage Interest Group members

Office Bearers:

Dr Monique Kilkenny (Coordinator)

MKDr Monique Kilkenny (PhD, MPH, Grad Dip Epidemiol/Biostat, B App Sci [MRA]) is head of the National Stroke Data Linkage Program within the Stroke and Ageing Research Group, Monash University.  Dr Kilkenny is a highly experienced epidemiologist who has worked in research for over 30 years at National and International level.

For further enquiries or membership expressions of interest please contact Dr Monique Kilkenny.

Email: monique.kilkenny@monash.edu

Prof Dominique Cadilhac (Co-chairperson)

DCProf Dominique Cadilhac (PhD, MPH, BN [post-reg], RN [div 1]) is Head of the Translational Public Health and Evaluation Division, Monash University.  Prof Cadilhac is an expert in public health research related to stroke and cardiovascular disease, particularly in the areas of health service delivery models, economic evaluation, program evaluation and chronic disease prevention.

Email: dominique.cadilhac@monash.edu

Prof Vijaya Sundararajan (Co-chairperson)

VSProf Vijaya Sundararajan (MD, MPH, FACP) is Head of the Department of Public Health at La Trobe University.  Prof Sundararajan has clinical expertise as a general physician both within Australia and overseas, and has worked within government and non-government settings.  She also helped develop the State of Victoria’s data linkage infrastructure and capabilities, and was the Foundation Director for the Centre for Victorian Data Linkage.

Email: v.sundararajan@latrobe.edu.au

Other members:

Dr Phil Anderson

Dr Nadine Andrew

Ms Rebecca Barnden

A/Prof James Boyd

Dr Sibilah Breen

Mr Lachlan Dalli

Mr Amminadab Eliakundu

A/Prof Steven Faux

Dr Felicity Flack

A/Prof Erin Godecke

Dr Rohan Grimley

Dr Trisha Johnston

Dr Judith Katzenellenbogen

Dr Joosup Kim

A/Prof Natasha Lannin

Dr Derrick Lopez

Dr Wayne Loudon

Dr Rachel Milte

Dr Lee Nedkoff

Ms Kate Paice

Dr Frank Sanfilippo

Mr Sam Shehata

Ms Tharshanah Thayabaranathan

Prof Amanda Thrift

Mr David Ung