Patients and Family Members

The Australian Stroke Clinical Registry (AuSCR) is a database used to collect information about what happens to people who have had a stroke or a ‘mini-stroke’ (transient ischaemic attack or TIA).  The information collected is about your care and treatment while you were in hospital and also your health status three to six months after your stroke.

Stroke affects more than 50,000 people in Australia every year.  The aim of collecting information on hospital care and treatment is to improve the quality of stroke care across Australia.  In order to achieve this we need to collect information from as many people as possible who are willing to participate.

Participation does not require you to do anything.  The information is obtained directly from your medical records and will be entered into the database by the hospital staff.  Three to six months after your stroke, you will be followed up by AuSCR staff by mail or telephone and asked to complete a short survey, to find out how well you have recovered since your stroke or TIA.  You can opt out of the AuSCR at any time by contacting us.

Participating in the AuSCR will not impact your treatment and involves no risks to your health.  All personal information is kept strictly confidential with access only to authorised personnel.  The Registry has Human Research Ethics Committee approval at each participating hospital.

De-identified summary data can be provided to government agencies, or used in medical journal articles.  In addition, the data may be linked with other government or registry entities to enhance data quality or completion, for example with the National Death Index to determine survival rates.