Since 2011, 40 research projects have used Australian Stroke Clinical Registry (AuSCR) data, or recruited participants through the AuSCR. These projects are listed below, sorted by date of approval. Click on each title for a description of the project and a list of any publications arising from the project.
Approval date
2020
Development of a digital health platform and care management support program for improving secondary prevention for patients after stroke or transient ischaemic attack
PI: Dr Jan Cameron
Monash University University
Type of study: Randomised controlled trial; AuSCR role: Recruitment
Use of lipid-lowering medications among patients with stroke and associated outcomes: using linked national registry and administrative data
PI: Associate Professor Monique Kilkenny
Monash University
Type of study: Data Linkage study; AuSCR role: Data provision
Understanding the prevention and long-term management of stroke by general practitioners
PI: Dr Joosup Kim
Monash University
Type of study: Data Linkage study; AuSCR role: Data provision
Evaluation of a group-based intervention to enhance adjustment to life with an acquired brain injury: A Phase II randomised controlled trial of VaLiANT (Valued Living After Neurological Trauma)
PI: Dr Dana Wong
Latrobe University
Type of study: Randomised controlled trial ; AuSCR role: Recruitment
Integration of audit and registry data to monitor quality stroke care and outcomes
PI: Dr Monique Kilkenny
Monash University
Type of study: Data Linkage study; AuSCR role: Data provision
Support After Stroke with group-based classeS: The SASS study
PI: Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Randomised controlled trial; AuSCR role: Recruitment and data provision
2019
How effective is using Registry Data for recruitment to a Falls/Rehabilitation in Stroke Randomised Controlled Trial
PI: Professor Natasha Lannin
Monash University
Type of study: Clinical trial; AuSCR role: Recruitment
Pre-hospital stroke care: economic evaluation of the Melbourne Mobile Stroke Unit
PI: Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Data linkage study and case-series; AuSCR role: Data provision and survey
Urban-rural differences in the care and outcomes of acute stroke patients
PI: Mr Mitchell Dwyer (PhD candidate)
University of Tasmania, The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Cohort retrospective; AuSCR role: Data provision
Reducing disability from stroke by improving access to best practice stroke care in Victoria – the STELAR Project (Shared Team Efforts Leading to Adherence Results)
PI: Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Cohort; AuSCR role: Recruitment
SA Stroke Data Linkage – tracking the impact of transforming health
PI: Professor Susan Hillier
University of South Australia, The Florey Institute of Neuroscience and Mental Health
Type of study: Cohort retrospective, AuSCR role: Data provision
Denial of stroke diagnosis in a national clinical quality registry population
PI: Ms Karen Barclay-Moss
The Florey Institute of Neuroscience and Mental Health, Monash University, Latrobe University
Type of study: Cohort retrospective; AuSCR role: Data provision
2018
Investigation of the pre-hospital clinical and system factors that impact the initiation of reperfusion therapies in acute stroke
PI: Mr Wayne Loudon (PhD candidate)
Queensland University of Technology
Type of study: Data linkage study; AuSCR role: Data provision
Evaluation of enhanced models of primary care in the management of stroke and other chronic disease (PRECISE)
PI: Dr Nadine Andrew
Monash University
Type of study: Cross-sectional survey and data linkage study; AuSCR role: Survey and data provision
Understanding factors that influence pre-hospital and hospital patient care to improve access to high quality acute stroke care
PI: Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Data linkage study; AuSCR role: Data provision
Predicting Rehabilitation Outcomes through data linkage of the Australian Stroke Clinical Registry (AuSCR) and Australian Rehabilitation Outcomes Centre (AROC)
PI: Dr Monique Kilkenny
Monash University
Type of study: Data linkage study; AuSCR role: Data provision
Construct validation of the EQ-5D-3L questionnaire for identifying anxiety or depression in patients with stroke
PI: Associate Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Cross-sectional survey; AuSCR role: Survey
2017
Building efficient and equitable pathways to and through rehabilitation in stroke: BEEPRS
PI: Dr Rohan Grimley
Queensland Health
Type of study: Cohort; AuSCR role: Data provision
Inspiring Virtual Enabled Resources following Vascular Events (iVERVE) pilot project
PI: Associate Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Clinical trial; AuSCR role: Recruitment and survey
John Hunter Hospital (JHH) and Tamworth Rural Referral Hospital (TRRH) Stroke Mortality Independent Report
PI: Professor Chris Levi
John Hunter Hospital
Type of study: Cohort; AuSCR role: Data provision and analysis
Emerging Treatments for Stroke Survey
PI: Professor Jane Mathias
University of Adelaide
Type of study: Survey; AuSCR role: Survey
An investigator-initiated, prospective, feasibility study to describe the occurrence of Fabry disease in people, aged 18 to 55 years, living with stroke in the community in Australia
PI: Professor Craig Anderson
The George Institute for Global Health
Type of study: Cohort; AuSCR role: Recruitment
Identifying gaps and inequalities in access to General Practitioner coordinated care for survivors of stroke
PI: Dr Nadine Andrew
Monash University
Type of study: Data linkage study; AuSCR role: Data provision
Healthy Living After Stroke: An online intervention for improving stroke survivor health behaviours and quality of life
PI: Associate Professor Billie Bonevski
University of Newcastle
Type of study: Clinical trial; AuSCR role: Recruitment
2016
Sex differences in the management and acute outcomes after stroke
(Data linkage study)
PI: Dr Seana Gall
University of Tasmania
Type of study: Cohort; AuSCR role: Data provision
Healthy Living After Stroke: Pilot study of an online secondary prevention program for stroke survivors
PI: Associate Professor Billie Bonevski
University of Newcastle
Type of study: Clinical trial; AuSCR role: Recruitment
Communicating disparities in patient outcomes in cardiovascular disease
PI: Dr Joosup Kim
The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Cohort; AuSCR role: Recruitment
Stroke123 part 1: Establishing high quality, integrated national data for stroke: a substudy of Stroke123
PI: Dr Nadine Andrew and Associate Professor Dominique Cadilhac
Monash University, The Florey Institute of Neuroscience and Mental Health
Type of study: Cohort; AuSCR role: Recruitment
2015
A Comparison of Compensatory and Restorative Approaches to Memory Rehabilitation Post-Stroke
PI: Dr Rene Stolwyk
Monash University
Type of study: Clinical trial; AuSCR role: Recruitment
National Stroke Foundation (NSF) FAST Campaign Follow-up Evaluation
PI: Ms Alison Wallace and Ms Kym Trobbiani
National Stroke Foundation
Type of study: Cohort retrospectively; AuSCR role: Data provision
2014
The impact of discharge planning on post-discharge stroke outcomes
PI: Dr Nadine Andrew
Monash University
Type of study: Cross-sectional (survey); AuSCR role: Survey
Health risk behaviours of stroke and TIA survivors and their informal carers
PI: Associate Professor Billie Bonevski
University of Newcastle
Type of study: Cross-sectional (survey); AuSCR role: Survey
Understanding the variations in acute care to reduce disparities in outcomes for stroke: what has been learnt from 4 years of collecting data in the Australian Stroke Clinical Registry (AuSCR)
PI: Associate Professor Dominique Cadilhac and Associate Professor Natasha Lannin
The Florey Institute of Neuroscience and Mental Health, La Trobe University
Type of study: Cohort retrospectively; AuSCR role: Data provision
Hospital readmissions and quality of life after stroke
PI: Ms Monique Kilkenny
Monash University
Type of study: Cohort retrospectively; AuSCR role: Data provision
The association between discharge planning and post discharge outcomes for patients admitted to acute care hospitals following stroke or transient ischaemic attack
PI: Dr Nadine Andrew
Monash University
Type of study: Cohort retrospectively; AuSCR role: Data provision
Telephone follow-up interviewing in a national stroke registry – a process evaluation of respondent comments
PI: Ms Karen Moss
The Florey Institute of Neuroscience and Mental Health
Type of study: Cohort retrospectively; AuSCR role: Data provision
2013
Exploring hospital and early discharge factors associated with long-term needs of stroke survivors and their carers
PI: Dr Nadine Andrew
Monash University
Type of study: Cross-sectional survey; AuSCR role: Survey and data provision
Improving stroke prevention after hospital: a focus on prevention medication and discharge care planning
PI: Dr Nadine Andrew and Associate Professor Dominique Cadilhac
Monash University, The Florey Institute of Neuroscience and Mental Health
Type of study: Cohort retrospectively; AuSCR role: Data provision
2012
Secondary prevention in stroke
PI: Dr Stacey Jankelowitz
The George Institute for Global Health
Type of study: Cross-sectional (survey); AuSCR role: Survey
2011
Stroke survivor and carer needs assessment
PI: Associate Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Cross-sectional (survey); AuSCR role: Survey
