The Australian Stroke Clinical Registry (AuSCR) is based on an opt-out process, in which patients are given information outlining the nature and purpose of the data collected, and are provided with the opportunity to withdraw their personal information.
All patients admitted to a participating hospital will be provided with written information explaining the purpose of the AuSCR and that:
- their personal identifying data will be provided to the Registry
- they will be contacted about their health status 3 to 6 months after their hospital admission
- they can choose to have their personal information removed from the AuSCR
This written information is contained within a Patient Information Sheet. Consent to record details of a stroke into the AuSCR is then assumed by participating hospitals, unless a patient requests that their personal information is not included in the Registry.
To “opt out” means that a patient requests to have their personal information removed from the Australian Stroke Clinical Registry.
Patients can opt out of having personal information included in the AuSCR at any time during their hospital stay by notifying hospital staff, or after discharge by contacting the AuSCR office on Freecall 1800 673 053. Relatives or other authorised representatives of a patient can also contact the AuSCR office to request the removal of the patient’s personal information from the Registry.
It is important that as many people as possible participate in the AuSCR to help improve the treatment and care of patients in Australia who experience stroke or TIA. The decision by patients as to whether or not to have their personal information contained within the AuSCR does not affect their clinical treatment in any way. The AuSCR team understands that patients may not want their details recorded, or may just change their mind.
If you would like to opt out of the AuSCR, please contact the AuSCR Office