Hospitals that are interested in participating in the Australian Stroke Clinical Registry (AuSCR) should contact the AuSCR office for details.
All hospitals wishing to participate in the AuSCR must meet the following criteria:
- be able to enter 100% of stroke and transient ischaemic attack (TIA) cases admitted to the hospital
- have adequate resources to commit to participation, including one or more staff members to fulfill the roles of Principal Investigator and Hospital Coordinator
- be able to assist with obtaining human research ethics and site specific governance approvals
- be willing to sign a Participation Agreement with the Australian Stroke Clinical Registry
- commit to data quality assurance processes
- complete approval processes for the Australian Stroke Data Tool (AuSDaT)
Most hospitals participate in the AuSCR under a state government based agreement, which supports central coordination and patient follow-up by the AuSCR Office. If this is not in place, fees for participation may apply.
Once your hospital has agreed to participate in the registry, an AuSCR Coordinator will work with your site Principal Investigator and Hospital Coordinator to obtain ethics and local governance approval. Following approval, we will arrange a training session (either online or in person) for staff involved in the AuSCR at your site. This training will include how to use the Australian Stroke Data Tool to input data into the AuSCR.
Following training, staff can begin informing patients about the registry and entering data. The AuSCR Office will develop hospital-specific resources to facilitate this work, inlcuding:
- posters and brochures to be displayed in the Stroke Unit
- Patient Information Sheet to be given and explained to each patient
- post-discharge contact letter to be sent to any patient not given a Patient Information Sheet during admission
Staff will be provided with relevant AuSCR manuals, documentation and follow-up to support their learning, such as:
- AuSCR Data Dictionary, with explanations of each data variable
- Hospital User Manual
- Additional training for new staff as required
- FAQs and training videos on the AuSCR website
- Regular newsletter with updates and data entry tips
- Webinars on specific aspects of the AuSCR
We recommend sites admitting over 100 stroke or TIA cases per year extract at least some of the required data from their hospital’s patient administration and/or electronic medical record system to maximise efficiency. The AuSCR team are able help you to set this up with your IT and/or HIS department.