Since 2011, 65 research projects have used Australian Stroke Clinical Registry (AuSCR) data, or recruited participants through the AuSCR.  These projects are listed below, sorted by date of approval.  Click on each title for a description of the project and a list of any publications arising from the project.

Approval date

2025

Evaluation of implementing interactive data dashboards within the Australian Stroke Clinical Registry (AuSCR) for quality of care monitoring and streamlining registry operations
PI: Dr Tara Purvis
Monash University
Type of study: Data linkage study; AuSCR role: Data provision

Estimating productivity impacts and health burden on stroke survivors and their informal carers
PI: Dr Mulugeta Molla Birhanu
Monash University
Type of study: Randomised controlled trial; AuSCR role: Recruitment

Harnessing the power of co-design to develop digital solutions and improve health self-efficacy after stroke
PI: Associate Professor Elizabeth Lynch
Flinders University
Type of study: Randomised controlled trial; AuSCR role: Recruitment

Australian Stroke Alliance Evaluation and Optimisation modelling
PI: Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health/Monash University
Type of study: Data linkage study; AuSCR role: Data provision

Evaluating the cost-effectiveness of the Australian Stroke Clinical Registry and Australian Stroke Living Guidelines
PI: Dr Ella Zomer
Monash University
Type of study: Data linkage study; AuSCR role: Data provision

2024

The feasibility and therapeutic utility of a 12-week telehealth delivered environmental enrichment program for young stroke survivors experiencing cognitive impairment
PI: Dr Travis Cruickshank
Edith Cowan University
Type of study: Randomised controlled trial; AuSCR role: Recruitment

Investigation of quality of care after stroke and impact on outcomes
PI: Dr Joosup Kim
Monash University
Type of study: Data linkage study; AuSCR role: Data provision

Hospital care costs and long-term outcomes
PI: Dr Joosup Kim
Monash University
Type of study: Data linkage study; AuSCR role: Data provision

Understanding the representativeness of the Recovery focused Community support to Avoid readmissions and improve Participation after Stroke (ReCAPS) trial cohort
PI: Associate Professor Monique Kilkenny
Monash University
Type of study: Data linkage study; AuSCR role: Data provision

Australian Stroke Clinical Registry – Return on Investment
PI: Dr Joosup Kim
Monash University
Type of study: Data linkage study; AuSCR role: Data provision

2023

Investigating health outcomes associated with denial of stroke diagnosis at 90 -180-day follow-up: insights from the Australian Stroke Clinical Registry (AuSCR) 
PI: Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health/Monash University
Type of study: Data linkage study; AuSCR role: Data provision

Exploring the unmet needs of people who provide support to survivors of stroke: a national survey
PI: Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health/Monash University
Type of study: Cross-sectional survey and data linkage study; AuSCR role: Survey and data provision

Validation of the accuracy of clinical diagnoses in the Stroke Registry and ICD-10-AM administrative data with imaging reports
PI: Associate Professor Monique Kilkenny
Monash University
Type of study: Data linkage study; AuSCR role: Data provision

2022

Australian paediatric AIS treatment in adult compared to paediatric hospitals
PI: Dr Nicola Fearn
Royal Children’s Hospital
Type of study: Data linkage study; AuSCR role: Data provision

SAFER-AUS: Screening for Atrial Fibrillation with ECG to Reduce stroke – a randomised controlled trial
PI: Professor Ben Freedman
University of Sydney
Type of study: Randomised controlled trial; AuSCR role: Data provision and linkage

Improving life after stroke with tailored support: Innovation in use of national registry data (A-LISTS)
PI: Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health/Monash University
Type of study: Randomised controlled trial; AuSCR role: Recruitment

Fever, Hyperglycaemia (Sugar), Swallow (FeSS) clinical guidelines adherence: analysis of national audit data and stroke registry data
PI: Professor Sandy Middleton
Nursing Research Institute/Australian Catholic University
Type of study: Data linkage study; AuSCR role: Data provision

Feasibility study of a multicomponent digital Care Assistant and support Program for people after Stroke or transient ischaemic attack: CAPS
PI: Dr Jan Cameron
Monash University
Type of study: Feasibility study; AuSCR role: Recruitment

Comparative effectiveness of routine Tenecteplase versus Alteplase in acute ischaemic stroke: an international collaboration using real world data (CERTAIN Collaboration)
PI: Professor Dominique Cadilhac/Professor Chris Bladin
Monash University/Ambulance Victoria
Type of study: Data linkage study; AuSCR role: Data provision

2021

Using Short Message Services (SMS) to Collect Patient Reported Outcomes for the Australian Stroke Clinical Registry (AuSCR) ‘AuSCR SMS Comparative Effectiveness Project’
PI: Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health
Type of study: Randomised controlled trial; AuSCR role: Recruitment

Generating new evidence to BEtter guide long-term mAnagemenT of Stroke for Tasmanians (BEATStrokeTas)
PI: Dr Hoang Phan
University of Tasmania
Type of study: Data linkage study; AuSCR role: Data provision

A Prospective multicentre, phase 2b randomised controlled double-blind trial, to determine the safety and efficacy of perispinal etanercept on quality of life at 28 days post treatment (PESTO)
PI: Professor Vincent Thijs
The Florey Institute of Neuroscience and Mental Health
Type of study: Randomised controlled trial; AuSCR role: Recruitment

An investigator-initiated and conducted, prospective, multicentre, randomised outcome-blinded study of antiplatelet monotherapy in patients with a history of stroke due to intracerebral haemorrhage (ASPIRING)
PI: Professor Graeme Hankey, Professor Craig Anderson, Professor Rustam Al-Shahi Salman
University of Western Australia
Type of study: Randomised controlled trial; AuSCR role: Recruitment

2020

Development of a digital health platform and care management support program for improving secondary prevention for patients after stroke or transient ischaemic attack
PI: Dr Jan Cameron
Monash University
Type of study: Randomised controlled trial; AuSCR role: Recruitment

Use of lipid-lowering medications among patients with stroke and associated outcomes: using linked national registry and administrative data
PI: Associate Professor Monique Kilkenny
Monash University
Type of study: Data linkage study; AuSCR role: Data provision

Understanding the prevention and long-term management of stroke by general practitioners
PI: Dr Joosup Kim
Monash University
Type of study: Data linkage study; AuSCR role: Data provision

Evaluation of a group-based intervention to enhance adjustment to life with an acquired brain injury: A Phase II randomised controlled trial of VaLiANT (Valued Living After Neurological Trauma)
PI: Dr Dana Wong
Latrobe University
Type of study: Randomised controlled trial ; AuSCR role: Recruitment

Integration of audit and registry data to monitor quality stroke care and outcomes
PI: Dr Monique Kilkenny
Monash University
Type of study: Data linkage study; AuSCR role: Data provision

Support After Stroke with group-based classeS: The SASS study
PI: Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Randomised controlled trial; AuSCR role: Recruitment and data provision

2019

How effective is using Registry Data for recruitment to a Falls/Rehabilitation in Stroke Randomised Controlled Trial
PI: Professor Natasha Lannin
Monash University
Type of study: Randomised controlled trial; AuSCR role: Recruitment

Pre-hospital stroke care: economic evaluation of the Melbourne Mobile Stroke Unit
PI: Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Data linkage study and case-series; AuSCR role: Data provision and survey

Urban-rural differences in the care and outcomes of acute stroke patients
PI: Mr Mitchell Dwyer (PhD candidate)
University of Tasmania, The Florey Institute of Neuroscience and Mental Health,  Monash University
Type of study: Cohort retrospective; AuSCR role: Data provision

Reducing disability from stroke by improving access to best practice stroke care in Victoria – the STELAR Project (Shared Team Efforts Leading to Adherence Results)
PI: Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Cohort; AuSCR role: Recruitment

SA Stroke Data Linkage – tracking the impact of transforming health
PI: Professor Susan Hillier
University of South Australia, The Florey Institute of Neuroscience and Mental Health
Type of study: Cohort retrospective, AuSCR role: Data provision

Denial of stroke diagnosis in a national clinical quality registry population
PI: Ms Karen Barclay-Moss
The Florey Institute of Neuroscience and Mental Health, Monash University, Latrobe University
Type of study: Cohort retrospective; AuSCR role: Data provision

2018

Investigation of the pre-hospital clinical and system factors that impact the initiation of reperfusion therapies in acute stroke
PI: Mr Wayne Loudon (PhD candidate)
Queensland University of Technology
Type of study: Data linkage study; AuSCR role: Data provision

Evaluation of enhanced models of primary care in the management of stroke and other chronic disease (PRECISE)
PI: Dr Nadine Andrew
Monash University
Type of study: Cross-sectional survey and data linkage study; AuSCR role: Survey and data provision

Understanding factors that influence pre-hospital and hospital patient care to improve access to high quality acute stroke care
PI: Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Data linkage study; AuSCR role: Data provision

Predicting Rehabilitation Outcomes through data linkage of the Australian Stroke Clinical Registry (AuSCR) and Australian Rehabilitation Outcomes Centre (AROC)
PI: Dr Monique Kilkenny
Monash University
Type of study: Data linkage study; AuSCR role: Data provision

Construct validation of the EQ-5D-3L questionnaire for identifying anxiety or depression in patients with stroke
PI: Associate Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Cross-sectional survey; AuSCR role: Survey

2017

Building efficient and equitable pathways to and through rehabilitation in stroke: BEEPRS
PI: Dr Rohan Grimley
Queensland Health
Type of study: Cohort; AuSCR role: Data provision

Inspiring Virtual Enabled Resources following Vascular Events (iVERVE) pilot project
PI: Associate Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Clinical trial; AuSCR role: Recruitment and survey

John Hunter Hospital (JHH) and Tamworth Rural Referral Hospital (TRRH) Stroke Mortality Independent Report
PI: Professor Chris Levi
John Hunter Hospital
Type of study: Cohort; AuSCR role: Data provision and analysis

Emerging Treatments for Stroke Survey
PI: Professor Jane Mathias
University of Adelaide
Type of study: Survey; AuSCR role: Survey

An investigator-initiated, prospective, feasibility study to describe the occurrence of Fabry disease in people, aged 18 to 55 years, living with stroke in the community in Australia
PI: Professor Craig Anderson
The George Institute for Global Health
Type of study: Cohort; AuSCR role: Recruitment

Identifying gaps and inequalities in access to General Practitioner coordinated care for survivors of stroke
PI: Dr Nadine Andrew
Monash University
Type of study: Data linkage study; AuSCR role: Data provision

Healthy Living After Stroke: An online intervention for improving stroke survivor health behaviours and quality of life
PI: Associate Professor Billie Bonevski
University of Newcastle
Type of study: Clinical trial; AuSCR role: Recruitment

2016

Sex differences in the management and acute outcomes after stroke
(Data linkage study)
PI: Dr Seana Gall
University of Tasmania
Type of study: Cohort; AuSCR role: Data provision

Healthy Living After Stroke: Pilot study of an online secondary prevention program for stroke survivors
PI: Associate Professor Billie Bonevski
University of Newcastle
Type of study: Clinical trial; AuSCR role: Recruitment

Communicating disparities in patient outcomes in cardiovascular disease
PI: Dr Joosup Kim
The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Cohort; AuSCR role: Recruitment

Stroke123 part 1: Establishing high quality, integrated national data for stroke: a substudy of Stroke123
PI: Dr Nadine Andrew and Associate Professor Dominique Cadilhac
Monash University, The Florey Institute of Neuroscience and Mental Health
Type of study: Cohort; AuSCR role: Recruitment

2015

A Comparison of Compensatory and Restorative Approaches to Memory Rehabilitation Post-Stroke
PI: Dr Rene Stolwyk
Monash University
Type of study: Clinical trial; AuSCR role: Recruitment

National Stroke Foundation (NSF) FAST Campaign Follow-up Evaluation
PI: Ms Alison Wallace and Ms Kym Trobbiani
National Stroke Foundation
Type of study: Cohort retrospectively; AuSCR role: Data provision

2014

The impact of discharge planning on post-discharge stroke outcomes
PI: Dr Nadine Andrew
Monash University
Type of study: Cross-sectional (survey); AuSCR role: Survey

Health risk behaviours of stroke and TIA survivors and their informal carers
PI: Associate Professor Billie Bonevski
University of Newcastle
Type of study: Cross-sectional (survey); AuSCR role: Survey

Understanding the variations in acute care to reduce disparities in outcomes for stroke: what has been learnt from 4 years of collecting data in the Australian Stroke Clinical Registry (AuSCR)
PI: Associate Professor Dominique Cadilhac and Associate Professor Natasha Lannin
The Florey Institute of Neuroscience and Mental Health, La Trobe University
Type of study: Cohort retrospectively; AuSCR role: Data provision

Hospital readmissions and quality of life after stroke
PI: Ms Monique Kilkenny
Monash University
Type of study: Cohort retrospectively; AuSCR role: Data provision

The association between discharge planning and post discharge outcomes for patients admitted to acute care hospitals following stroke or transient ischaemic attack
PI: Dr Nadine Andrew
Monash University
Type of study: Cohort retrospectively; AuSCR role: Data provision

Telephone follow-up interviewing in a national stroke registry – a process evaluation of respondent comments
PI: Ms Karen Moss
The Florey Institute of Neuroscience and Mental Health
Type of study: Cohort retrospectively; AuSCR role: Data provision

2013

Exploring hospital and early discharge factors associated with long-term needs of stroke survivors and their carers
PI: Dr Nadine Andrew
Monash University
Type of study: Cross-sectional survey; AuSCR role: Survey and data provision

Improving stroke prevention after hospital: a focus on prevention medication and discharge care planning
PI: Dr Nadine Andrew and Associate Professor Dominique Cadilhac
Monash University, The Florey Institute of Neuroscience and Mental Health
Type of study: Cohort retrospectively; AuSCR role: Data provision

2012

Secondary prevention in stroke
PI: Dr Stacey Jankelowitz
The George Institute for Global Health
Type of study: Cross-sectional (survey); AuSCR role: Survey

2011

Stroke survivor and carer needs assessment
PI: Associate Professor Dominique Cadilhac
The Florey Institute of Neuroscience and Mental Health, Monash University
Type of study: Cross-sectional (survey); AuSCR role: Survey